Doctor's Doctor's Doctor's

Woke up went to IV therapy, nurse asked me to wait to talk to Dr. Lee I haven't seen in weeks so I was pretty surprised. Dr. Lee was concerned with me being in IV therapy daily. There are steroids that they are giving me that are not to good for my kidney's. He us also concerned that the IV fluids are not allowing me to hydrate myself as I need to be, making my tummy smaller. So the new plan is every other day. They are also going to add some work for physical therapy back and legs to get me stronger. I will have orders for IV fluid Sat and Sun, but he asked me if I can just go one day. B had an amazing idea to go ahead and head to Tri-cities this weekend. I was floored and excited so it looks like we are leaving Friday. And if I need it then we can come back early for Sunday fluids. I am taking tomorrow off fluids and am going to need to hydrate myself. Then after I went to physical therapy I had a new lady because my therapist was ill. It was so nice, I did get a call right before I went in that I needed to go to the Valley Office to see Dr. Laugen. So I booked it there after physical therapy and made arrangements they really want a pik line again, but I said no. It should be easier now (hopefully) since it's only every other day. I don't want a port in my chest either especially since it sounds like they are trying to kick me off IV all together. Will see. I really wanted to be back at work Monday. sigh... then I got home and picked up Honey who made an amazing Tamale Pie and cake. It was perfect and incredibly moist!

AYE

Tough days and long nights! I'm on strong pills still haven't kicked in, but I also took a Oxycodone for the back pain. I made blueberry pancakes for the girls this morning and they loved them I ate about 1/2 of a bigger one. Lounged around a bit after washing some dishes. I got in a feeble argument with B over nothing. It is just so hard to shake this grumpy feeling. The good thing is though he listens to me later about my "cabin fever madness."And so well and doesn't take it personal. He is my rock. Rubs my back. Speaking of back rubs I get to go to physical therapy tomorrow! Silver Lining!! I am tired, tired, and tired. My bum hurts, I think it because there is a very lack of cushion.

Went to IV therapy look an extra hour they were slammed and unfortunately my IV did not hold up, so I have a happy one, left hand right by my big thumb. Comfy. All I really wanted was a shower! Honey is coming tomorrow , hmm Tamale Pie. Plus I heard bringing a cake! Oh yes!

Silver Lining...

LONG Day

I went to the hospital today for fluids and medication... woke up early so I could get a shower in before the IV was set for weekend. Get to hospital check in by like 9:30-ish, I had to wait until 12:30 to get hooked up! I had a nurse who could not find any veins so she called some ER nurse who also had trouble and finally got it in at 12:30! Such a long time! I was borderline livid, but she was so sorry about delay and nice. I then had this crazy old nurse who was really rough, irritating. Lunch at least was great! I was able to eat had a grilled cheese and fresh fruit plate. The melons were so so so good! They had a plain yogurt dip, mmm. I left the hospital at 3:30pm, Ugh. At least tomorrow I know I'll be done faster since I have an IV in still.

Felt pretty good afterwards so I helped B with laundry and kitchen. I even switched out our Xmas decorations in the bathroom. It was so about time :) I loved the theme though, super cute. Definitely putting it up again next year. My back hurts I think I may try those pills tonight. Kinda nervous. Will see how it goes.

I did make dinner for girls tonight tacos with avocado, tomato and cheese with sour cream. And I made some dessert I chopped up a mango and put it with a small vanilla ice cream scoop and a bit of whip cream. They loved it, mostly ate mango so it was perfect.

Happy Friday!

Tired today. Woke up not feeling to energetic. I made the girls some breakfast burritos and some waffles on the side. B said that I kinda overdid breakfast they usually eat lighter. Lol I was hungry I think that had a lot to do with the plates. I had about 1/2 a burrito, it was pretty darn good. I then dropped Belen at school and packed her lunch. She asked B about some kisses, I guess he throws 1 or 2 Hershey kisses in her lunch. I thought it was so sweet. I went to doctor appointment after dropping her off, they are setting me up for fluids in hospital this weekend again, yay. Truthfully it does help it is such a worry to see if I can hold up until Monday, without my medications. I have had a lot of trouble sleeping lately which does not help with the fatigue, so they prescribed me this powerful pill. It is to sleep, anti-nausea, and anti-stress. She said to start out with one and I can up the dose to two but if one works to stick to that. I guess they are powerful and pretty addicting. I am getting desperate as far as sleep goes, only reason I let them prescribe some medication. The nurse also prescribed a powerful mouthwash, it has an anti-fungal, antibiotic, and anti-inflammatory or something like that. I had to get it special ordered Rite Aid couldn't make it. So I hope the specialty pharmacy is open tomorrow.

We went to see Avatar tonight! WOW!! Best movie of all TIME. I mean I cried I was in such awe of the special effects there is no way anyone should not see that movie in IMAX 3D! It literally is the BEST MOVIE! My jaw was open the whole time, crazy amazing. I was so happy B took me even though he already saw it with the neighbor. The only movie he has ever seen twice since Bad Boys! I thought that was hilarious. We had some food at AMC, I had a really great yakisoba noodle tray with great veggies and shrimp! It was delicious, then I got a waffle cone of Ben and Jerry's peanut butter dough ice cream! YUMMY! Just one scoop, B helped me polish it off :)

Had fun but I'm still pretty weak still takes me a minute to do stairs and going from ground to standing HA! Takes forever to get back up! Kinda funny, but embarrassing too! We went with his buddy, he was all uh you ok? I just smile, ya just weak... I am so ready to get some strength back!

Fun

Went to IV therapy this morning 8am nice, took an hour to get the IV in. She tried my right hand, OWEE! She says there is too much scar tissue in my hand, I was crying! Man, she stabbed and stabbed and stabbed. Then super easy gets it in the left arm middle perfect right after. Sure my wrist is fat as heck and bruised... but hey whatever.

Afterwards it was so sunny I was able to just drive around and do a little alone shopping. Best kind. Made the mistake of trying Long John Silver's for lunch, YUCK. The thinnest cod totally deep fried and tasteless! Then they like fry these balls of dough that are supposed to be some horrible lame excuse for a biscuit or something. Went to physical therapy at 2 it was so nice, it's my favorite part of the week... addicting!

It was Trevor's Birthday today, we went to Wolf Lodge a really nice steakhouse, yummy. I had some salad, bread, broccoli, salmon, and dessert. YUM YUM YUM. B is out with his bro's celebrating. I hope he's safe, he definitely has been taking good care of himself. I'm not too worried. It was fun getting dressed up I even flat ironed my hair. First time in months, and I was able to wear the cute sweater my Dad got me for Christmas :)

Last night was TUFF!

I was in SO much pain last night!! Thank goodness, B rubbed my back forever! I had a huge stomach ache and my back was hurting me so much I was crying! Brandon forced me to take a oxy and it worked thank goodness. I was able to get some great sleep and wake up with a smile. After I received my IV treatment I felt so much stronger then I was able to go to physical therapy which just brought the full healing effect. Poor B took Belen to the ORV park, to ride her 4-wheeler and they got stuck in an ice puddle for hours! I felt so terrible there just was nothing I could do. They made it home around 9pm. Poor kids. They said they had fun though! Needless to say, No Avatar tonight, Brandon is frozen. His feet had been in ice since 5pm! YIKES!!

YAY!

Had a nice weekend, my parents came. It is so great to just relax and get pampered! I got a pedicure from my mom and my dad cooked me some amazing baby-back ribs that melted in my mouth! I just had the other one for dinner tonight. It was so nice and I'm so lucky. I have had a really low pulse this weekend and have been going to bed earlier, it's weird my energy isn't coming back as fast as I'd like. I guess that's the way it goes though, I'll take eating food over anything else! I had an awesome nurse at Deaconess IV treatment, she got my vein the first time and I actually still have it in! That will save me tomorrow, I have IV therapy at 1 then at 4 physical therapy, kinda cutting it close. It helps to have my IV already in that's what usually takes the longest. I still may head over there a bit early tomorrow. I was told by the nurse at Deaconess I should be considering a port in my chest, and that it makes it so much more convenient and it's under the skin so I can shower and not hurt so much. But then I looked over the pamphlet OUCH! Plus I really don't know how much longer I will be in IV therapy... I am supposed to be re-evaluated on Tuesday. So I guess will see.

Funny that B wants to take me to Avatar, tomorrow, it's so wired I usually am the one begging him to take me to the movies. He must have really enjoyed it! I think we are going tomorrow after my appointments, if I feel strong enough. Hopefully.

Eating anything and everything

Went to IV therapy ate some animal crackers and a whole can 5.5 oz of apple juice, yummy. A really sweet volunteer offered me some homemade cookies, so good and gooy soft. I think they were like bran or something, but it was nice and moist so I could swallow it. They took the IV out of my right hand, so relaxing I am trying to stay as hydrated as possible to make the poking a bit easier.

Afterwards I went to get some gas, pick up my thrush medication, and some Zips. YUCK! The burger was burnt, the fries were ok with barely any fry sauce. The only thing I am still sipping on is the raspberry ice tea, yum. So then I went to my physical therapy at 2pm it was so relaxing, I learned some new techniques and it is so amazing the difference after just an hour! Afterwords I went to Panda got some chicken mushrooms and zucchini(SUPER good), beef broccoli(too crispy) and rice and noodles. Then I hit up KFC ordered a leg, breast, mashed potatoes, biscuit, and coleslaw. That was ok, mashed potatoes burned my throat, but the chicken leg was great with the biscuit with butter. Shared leftovers with the kids. Feeling pretty weird now kinda full, kinda disoriented, and tired or something. It's just such a STRANGE feeling. FULL. I had a cracker with some cheese which hurt the side of my mouth I have sores still I am out of that topical lidocain, so I may request some manana. Here here to feeling better!

My folks are thinking about visiting this weekend, we are still going to be heading to Deaconess for IV treatment. I don't want to risk all this progress!

Slept well

Had a good day, went and got my medications and was able to drink about 4 oz of mango peach juice, and had about 2-3 crackers again at IV therapy. I even was able to speak a little to the people around me that was nice! The nurse came in and said she spoke to my doctor (radiologist) he told her it is not uncommon nor is he surprised at how stick I still I am, he said he wouldn't be surprised if it was closer to 2 months total. He even said that there are ups and downs to be expected! EH... where was this info months ago?! Anyway they are calling it supportive therapy and they will help with this for weeks as necessary... joy... As far as the pik line goes, they said its my choice but the more hydrated I get the easier the needles will go in, and then the IV can stay for about 3 days. B said that he wouldn't recommend getting the pik again because I was on morphine when they put it in and I was dying, as he was passing out, and his mom offered to come with me to get it if I decided to go for it! It was kinda funny. So as for now... no dice.

B went to pick up my PC so I can work from home from my job, but my boss said that corporate cut working from home altogether so I can not do that so just to get myself to 100% and then come back to work and that their thoughts were with me. At first I was concerned that I may not have a job soon, but then when B said how supportive he was I felt much better.

Later I had some more energy so I made some green beens to accompany B's mac and cheese for dinner, I actually ate a whole (small bowl) of both, it was so great! Then later the girls and I made some blueberry muffins, I had 2 small ones with a glass of milk! So nice to have food in tummy, I took an oxy for pain. I need to keep up on my stool softeners since I am eating again, I like that problem though. It's better than alternative, I am getting excited!

Back to my meds

So I am back, have an IV in my hand (they have way to much trouble with my little veins!) Yikes it took 3 times and lots of "exploring" with the stab they initiated. NICE! They want to give me another pik line since it looks like I at the very least will be doing this until next Monday and they will not be skipping weekend I will go to Deaconess to get the treatment. I'm debating I mean OUCH! But then again the needles are giving me nightmares.

I did go to physical therapy this morning, I was so tired I wanted to cancel, but a look in the mirror let's me know to get that tail in gear. My face is still swollen, and the greatest part is it's about an hour and I come out feeling totally relaxed. My therapist smells like cinnamon raisin bread, LOL! I am officially losing my mind when it comes to food! During IV treatments today I literally broke down and cried cause B smelled like Cool Ranch Doritos! I mean people were like what the...? It seems absurd but no one I know knows what this is like. It's like starving with food all around you! Oh wait it's not like that, it IS THAT!

I pretty much haven't moved around too much B went to the movies with the neighbor and Belen helped me all afternoon. Putting Yesi to bed, brushing her teeth, and rubbing my feet. I finally had some snack though, like 4 bites of some pasta and 2 crackers with a Snapple Juice Drink! For dessert I had about 1/2 a piece of warm bread with jelly and peanut butter... I feel so much better than yesterday, thank goodness!

Off my meds this weekend...

I had a super hard time this weekend, they took IV out and all my fluids and medications. I've thrown up this weekend, haven't been able to keep fluids down, and I have SO much mucus AGAIN. It is so frustrating! I mean I feel like I finally move forward and then BAM back to feeling like I should go to hospital. I have a physical therapy appointment in the morning, and then get to see the doctors at 12:40pm, so they can see how I did this weekend. At this point I'm pooped, my lips hurt from wiping mucus, and I am so hungry I'm queazy.

On the up side my sis and her boyfriend, came to visit and we went to mall. It was really nice to get out of the house. I bought a sweater and some comfy cute shoes.

I am going to bed, so I can get another day behind me.

IV Treatment and Physical Therapy Today

Woke up to my IV therapy early then went to physical therapy, did it alone. It was actually nice to have a little control, I have felt so out of it as of lately. I read some books and went to sleep I kinda took a really warm blanket that knocked me out! It's about a 3 1/2 hour process I actually timed it this time since I had therapy. Therapy was a lot more relaxing than I thought, I was worried it would be painful cause my mouth only opens 2 cm(she measured it). She showed me some moves to do at home and I will see her 3 times a week, she wants to get me going and chewing. Kinda exciting to here some confidence!

I had some bites of a hamburger a couple french fires and a pina-colada slurpee. YUM! I've had a lot less mucus lately and have been able to eat a little little bit more. Then B made girls some mac'n'cheese and I had a spoonful or two. Then I had some energy and went grocery shopping, and B unloaded it... nice cause I don't have that much energy!

Doctor's appointment today

So different going to doctor today, I have no voice. So I wrote down everything I wanted B to say and then while he was reading it to nurse I started crying and cried for about 5 full minutes or it seemed like... Things really suck and to hear it come from someone else it's like yeah wow no wonder I am so bummed all day long.

The nurse ended up recommending getting a week of IV fluids, antibiotic, anti-nausea medication, steroids, and then a Rx for thrush meds again(still got it). So we got hooked up OWE! and started again we kept the IV in so oh yeah :) I get reminded every time I bend my arm the wrong way. But, if it lasts all week WHOHOO!! No more pokes. The whole treatment is about 3 hours daily outpatient. The weren't concerned too much about not eating food, its the lack of fluids and medication that they think will help. It should decrease mucus, she also recommended the anti-nausea patch behind the ear to so the same.

I had some more otterpops and a little light blue gatorade from the freezer today. But still had mucus city going on, nurse said it'd probably be a couple days before any significant improvement. I so so so don't want to get to excited.... eh... whatever i weigh 118 lbs at this point I could float away tomorrow...

So sick and tired of this!

Spent yesterday puking. Today, no difference. I have eaten about 6 otterpops(bolis). Yum. I haven't thrown them up yet, nice.

Brandon and I went to see Sherlock Holmes for New Years and then caught the fireworks right after, it worked out perfectly. It was way too cold for my skin and bones body, but Brandon got us a spot right by a large warm fire pit to watch the show. There was a man burning his shoes, trying to warm his feet. He stated it was a controlled fire so we left him alone. I was so happy to have gone and done something for New Years since I feel like I have missed so much this Holiday season. Even though I was spitting up mucus-y blood, I've been doing that lately into Kleenexes and napkins, it beats swallowing it. I still find myself throwing up tons of mucus, which I am trying to keep out of my stomach all together. I would LOVE it to stop. That would help me eat and I think I am going to beg my Doctor to give me something for it. It's been a month now, what happened to all the improvement. I can't even talk yet! Grr...